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Your ‘conspiracy theory’ is my blood and flesh

By Carmen D. on Tuesday, April 15th, 2008, 1:17 am Comments

In the winter of 2004, a source first told me that the Federal government had sanctioned testing an AIDS vaccine on mostly black and Latino foster children ages 1 month to late teens. I did not believe it. When finally convinced that it was true, I sobbed openly as we walked through the park. I had only the back of my hand to wipe my eyes and my nose, but I didn’t care. I was so enraged and so impotent. It was excruciating and useless to have this knowledge because I didn’t have enough of the story to go to a reporter and it would be almost impossible to prove anyway cloaked as it was in the “private records” of foster children.

Then mercifully, a few months later, AP broke the story:

WASHINGTON – Government-funded researchers tested AIDS drugs on hundreds of foster children over the past two decades, often without providing them a basic protection afforded in federal law and required by some states, an Associated Press review has found.

The research funded by the National Institutes of Health spanned the country. It was most widespread in the 1990s as foster care agencies sought treatments for their HIV-infected children that weren’t yet available in the marketplace.

The practice ensured that foster children — mostly poor or minority — received care from world-class researchers at government expense, slowing their rate of death and extending their lives. But it also exposed a vulnerable population to the risks of medical research and drugs that were known to have serious side effects in adults and for which the safety for children was unknown. SOURCE

Then nothing; there was almost no reaction. This news didn’t even rate a “Frontline” or “Nightline” spot.

When many white people hear Reverend Jeremiah Wright preach about AIDS being created by the US government and given to African Americans, they laugh at his suggestion as preposterous. But most black Americans understand Jeremiah Wright’s suspicion. We understand suspicion because we remember that Indians were given blankets infected with smallpox by government. We understand suspicion because we remember the Tuskegee experiments. We understand suspicion because we remember that the CIA facilitated cocaine sales to the Bloods and Crips and channeled proceeds from those sales to Nicaraguan contra guerillas. We understand suspicion because we remember that black and Puerto Rican women were sterilized against their will by the US government. We understand suspicion because we know that on any day, another secret government sanctioned experiment that puts black people’s lives at stake will come to light. And we know there will be more after that. Here’s the latest:

BALTIMORE – Scientists using federal grants spread fertilizer made from human and industrial wastes on yards in poor, black neighborhoods to test whether it might protect children from lead poisoning in the soil. Families were assured the sludge was safe and were never told about any harmful ingredients.

Nine low-income families in Baltimore row houses agreed to let researchers till the sewage sludge into their yards and plant new grass. In exchange, they were given food coupons as well as the free lawns as part of a study published in 2005 and funded by the Housing and Urban Development Department.

The Associated Press reviewed grant documents obtained under the Freedom of Information Act and interviewed researchers. No one involved with the $446,231 grant for the two-year study would identify the participants, citing privacy concerns. There is no evidence there was ever any medical follow-up. Sludge fertilizer program spurs concerns, Associated Press

Do you see now? Do you understand?

UPDATESenate Hearing Planned On Sludge, NAACP Watches On

hat tip Bakare Chronicles & African American Political Pundit

  • mike
    If you look at the literature on the medical research conducted on prisoners, you'll find that those studies were incredibly segregated, with up to 80% of research subjects being African-American men. Now, African-Americans are disproportionately represented in the US prison system...but these studies did not proportionately use whites and blacks in these studies (it should have been about 60% white, 40% black if that were the case). A powerless study population with an unbalanced research cohort.
  • Phelps, you and I will agree to disagree about this. I believe one factor was powerlessness and one factor was race. If not, why not use men from Appalachia as well? Why wasn't the study integrated?
  • I wonder about government intentions, but more often than not, sloth and stupidity are a better explanation than malice. Tuskegee and the eugenic sterilization happened to powerless victims. Black people are no longer powerless in America. It is like when they asked Willie Sutton why he robbed banks. "That's where the money is." Tuskegee happened to black men because they were powerless more than simply because they were black.
  • Hey Phelps, welcome to the conversation. As I have stated very clearly, although I do not believe the government created AIDS to perpetrate genocide, I do understand why many would so easily believe it to be true. And given Tuskegee, forced sterilization and other historic actualities that I reference in this post, some would say it would be naive not to wonder about government intentions from time to time.
  • This is the fundamental disconnect that I think this country is seeing highlighted right now. I agree that covert testing on foster children is horrible and stupid. The government does horrible and stupid things more often than not (which is why I am libertarian and want to get rid of as much of the government as possible.)

    But how do you make the leap from "the government tested drugs on black, latino and white foster children" to "the US created AIDS in an effort to exterminate black people as a race"? These really are night and day. In one case, you have stupid people doing something stupid that they at least think will help the people they are experimenting on. In the other, you have premeditated plan for genocide. The two are not comparable in most people's minds.
  • Malicia
    I just came to this link from Nezua's blog. That is horrible :(

    Does anyone remember the story of two gay male nurses who's foster child had AIDS? They took such good care of him the AIDS wasn't even showing up in blood tests anymore, and so then suddenly the boy was adoptable. And I don't know how the story ended up but they tried to adopt him, and they weren't able to because they were gay. And I think they moved to Washington State, but because he was still technically from the foster care system in Florida (my home state, love/hate :( ) which prohibits gay people from adopting, they couldn't do it. I think first just one of them tried to adopt by himself, making no mention that he was gay, but there was actually a box for sexual orientation and he left it blank, so that was enough for themto say to a guy filing for adoption by himself "nope"

    My point of the story is good parents who make the effort to educate themselves about medical issues the best advocate for children with medical issues (I should know, I have Turners' syndrome and thank my lucky stars for my parents - and I was involved in a medical study for human growth hormone, so I can echo what Carmen's saying about the stages) and here's a case where the kid had one and the gvmt. took him away from the parents because they were gay. More to the post topic, kids can't make these kinda decisions on their own, they need an advocate, and the government wasn't being their advocate in this situation. Carmen's right, if they had parents who WERE, they wouldn't have signed their kids up for this, and the gvmt should've taken the care of them that others wouldn't rather than use them as lab rats.
  • Nez, yes horrifying is the right word. I think situations like this are too much for some people to handle because if they acknowledged the full depth and dimension of government supported abuse that goes on in this country, their world view would be changed. And for some that is simply out of the question.

    Jose, I believe these actions are criminal. Why is no one in jail? And what are they testing right now...and on whom?

    Hey Mike, welcome to the conversation. I want to read "Medical Apartheid." Thank you for telling us about it.

    Hi Macon D, welcome to the conversation. If America really wants a conversation about race and to remove our racial baggage from future generations, then let's start with a comprehensive and honest teaching of history. Your site is great. I hope you'll stay with it for a long time.
  • (And thanks much for adding me to your blogroll! I'll reciprocate when I get a list added to my site--was already planning to, actually.)

    Macon D
  • Sheesh, this is horrible, but really not surprising, given the run-down you gave of familiar racist experiments in the past. How nice it would be if, when American kids are taught about Nazi doctor experiments on Jewish prisoners, these similar American examples were added to the curriculum.

    Nice answer to Gretchen too.

    Macon D

    http://stuffwhitepeopledo.blogspot.com/
  • mike
    This is appalling but unfortunately not new. Carmen talks about Tuskegee but medicine (and science in general) has a long and sordid history of testing medical therapies/procedures/drugs/toxins on poor folks who are disproportionately black, latino, or native american. There was Dr. Marion Sims who experimented on African-American slaves to perfect surgical procedures for affluent white folk, radiation experiments on prisoners and citizens who were disproportionately black, forced sterilization in all corners of the country...I could go on. If anyone wants an interesting perspective into the on-going history of medical experimentation on poor, brown people then they should pick up a copy of Harriet Washington's "Medical Apartheid," it has been an illuminating read.
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